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The worried mommy
1:17 p.m. May. 25, 2004
The current mood of burntautumn@accesscomm.ca at www.imood.com


A lot has been going on this weekend. I'm tired from it all. I could barely get out of bed this morning. The phone was ringing so I was forced to groggily make my way to the other end of the house. I got rid of my bedroom phone because it irritates the hell out of me.

A storm is coming in. I love it just before it starts to thunder and rain, the skies slowly get darker and the winds slowly pick up.

There we go, it just started. It's been raining so much. It rained all weekend too, which was nice to fall asleep to. I am guessing my daughter's soccer game will be canceled. This is the second game out of four that's been canceled due to rain.

I'm feeling a bit better about my son's situation. It just feels like there's been so much he's been through since he was born. He got really sick and ended up in the hospital for five days when he was only a month old. I was in there with him the entire time and I barely slept. The nurses had to kick me out to get some fresh air for at least an hour every day.

Since then he had been seeing a special doctor and for the first year of his life he was getting regular ultrasound tests done every few months to check on his kidney. If he had a fever, I had to take him in right away and have a urine sample taken. It was a lot to have to wait for, waiting to see if it would get better, if it would get worse or waiting for anything. It turned out that nothing more was needed to be done even though is kidney is still dilated. Even during that hospital stay he went through so much testing. I was always worried it might effect him on a psychological level because I believe babies remember things, they carry an energy with them as they grow up.

We went through and EEG to check for seizures this time around because he has staring spells for short moments at a time. We've been through a lot more and are seeing a bunch of different specialists for him.

He's not talking, he's very withdrawn a lot of the time yet he is very happy. He laughs and smiles at everyone but there are things he can't seem to cope with. He can't really adapt to change or take on too much. He was talking a little, then stopped one day but kept his personality. It seems like he is in his own world and if the world around him stays safe, he'll be happy. When it changes though, it's a nightmare for us all.

He's seeing a child psychologist and a few other therapists. It's all about trying to get into his world. He's in for intensive therapy now so we see someone every week. He has behaviors of mild autism, yet it could also be psychological so this is why he's going to have someone working with him at all times for the next six months. He is not being diagnosed with anything until then.

He's an interesting child though. He's two years old and very different from his sister so far. Everything is completely different with him. It's a whole new learning experience. She was a breeze, we were lucky that way. She did everything early, potty trained herself and is talking almost perfectly for a three year old.

He can make patterns like you wouldn't believe. He organizes things constantly and sometimes if I walk throughout the house there are so many things laid out in interesting patterns. Rows and rows of straws, or square blocks making a bigger block, like-colored objects in a circle or he'll grab a colored shape and make these piles of things that are similar. He'll even make designs.

You can always see him in deep thought and that's when you can't communicate with him at all. That one gets a little tough at times. He also has some weird sensitivities. He won't touch anything wet or cotton-like. So foods that fit that description are out of the question for him. He also really hates to be messy and if it messes him up just a little, like something sticky touches him, then he won't eat at all. Meals are a whole new job in itself now.

I'm still waiting for the results back. Those one are the most crucial to me right now. Is he having seizures or isn't he? The type they suspect are the ones that only last a few seconds. They can't even be detected really, except by him kind of spacing out.

To me he is absolutely normal, he just needs a whole different structure in how he works and how we work with him. Jesse and I are so grateful to be able to have him and to be able to go through life learning with him. It's just all the other tests that really get to me because he can't understand and it puts him in high levels of stress. I have held back a lot of tears having to hold him down for various things. It's just hard to be a mother in those situations.





I am living in a world that is asleep - Jul. 17, 2007
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Small update, very small. - Nov. 21, 2005
Hurry up and eat some of this - Aug. 31, 2005
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